I’m writing this post on Monday 20th and I have just had my PIP assessment done over the phone.
Well there’s the first problem in this story. Giving someone with ASD, ADHD and anxiety an assessment over the phone. Talking to someone I don’t know over the phone sent my anxiety into overdrive. I also, and this may seem strange, prefer to do appointments face to face rather than over the phone as I find it impossible to concentrate when talking over the phone as there are too many distractions around me. My cat decided to take this time to run around the house and cause trouble, I have already found two items he decided were in the wrong place and flung across the room.
The second problem was that she was typing my answers, which is not only distracting but causes me discomfort. I quite often do my own writing on my ipad or by hand instead of on the computer because of the noise of the keyboard. This is the second time I have had an appointment were ASD has been cited and the assessor hasn’t thought to help alleviate causing sensory issues, even after I have given an answer elaborating on my audio sensory issues. I know some people would think why I didn’t say anything but I think that if I do then I will sound rude and I would rather put up with it than come across rude. This is a behaviour I am trying to break out of but 30+ years of learned behaviour is hard to change.
I was simply asked a bunch of questions, which were mainly the same questions I already answered on a form sent to me. I was a bit perplexed that I wasn’t asked anything to do with the motability side of things to do with PIP. This is questions about making journeys. I wasn’t asked if I am able to make journeys, plan journeys, go somewhere new etc. so I am not hopeful about the outcome of qualifying for this side of PIP.
The whole phone call didn’t fill me with confidence and I am expecting a bit of a fight on my hands. I don’t feel like a lot of the right kinds of questions were asked. All of the questions are more in the sense of can you do this? and not how does this affect you? or what are the repercussions of doing this activity?, which I feel are the questions that should be asked when it comes to anything to do with developmental disorders, mental health etc. I have talked about before that there is a lot of things that I am perceived to be able to do but no one sees the before and after of these activities. Yes I can do my own shopping once a week but I need headphones and sunglasses to even get out the door then I am unable to do anything else for the rest of the day because I need to ‘recover’ from large tasks.
PIP assessments are notorious for turning people down and not giving them the help needed and I know people who are having to fight for this help. I am expecting a fight on my hands. The only positive I can take from the call is that the assessor did at least have some knowledge on ASD as she knew what I was talking about when I mentioned stims so this is something that may go in my favour. We shall see.
All I can do now is sit and wait for the outcome and see where I go from there.